Online Community Facilitator

We are looking for someone to help us improve the wellbeing of people with ME/CFS and long COVID and their whanau by: + Facilitating connections and relationships within the regional online ME/CFS community to reduce the isolation experienced. + Providing approved information about ME/CFS and strategies for living with it. + Sharing news of interest to our chronically ill community.

Do you have? + A qualification relevant to the health, disability or social work sector is desirable. + An understanding of ME/CFS, or a similar chronic disabling condition, and the impacts on quality of life. + Warm, kind, non-judgmental, and calm manner

A position description is available for this role. Please apply to request a copy and to tell us why you are interested in this role.

--- *Recent testimonies...* * “If I hadn't met with the Nurse who validated my experience of my chronic illness and advocated for me with my GP to obtain a diagnosis, I would not be here. Life had got too hard." * "I love this organisation, so caring and respectful in everything that they do, and always looking to progress forward."

--- *Did you know?* People with ME/CFS, Myalgic Encephalomyelitis /Chronic Fatigue Syndrome and long COVID have a reduced level of functionality that means they cannot complete normal activities of daily living. An additional burden is that doing too much physically or mentally can trigger Post-Exertional Malaise – a worsening of symptoms that can last for days or more. Many people with ME/CFS are house or bed bound, are unable to work, and do not have access to adequate financial, home and mobility supports through the welfare and health systems.